Guest Posted August 1, 2018 Report Share Posted August 1, 2018 Very concerned about our records being available to multiple people. How do we opt out of this? Privacy is very important about testing and results etc Link to comment Share on other sites More sharing options...
rawindustrie Posted August 1, 2018 Report Share Posted August 1, 2018 Google the site. One of the suggested searches is to opt out. Take the link that comes up and it'll take less than 5 minutes to go through the opt out process Link to comment Share on other sites More sharing options...
SubFFboy Posted August 1, 2018 Report Share Posted August 1, 2018 3 hours ago, rawindustrie said: it'll take less than 5 minutes to go through the opt out process Unless you forgot that you opted-in to it a few years ago as part of a clinical trial. Learn from my mistakes. I can't actually opt-out now. It's a fucking nightmare. Link to comment Share on other sites More sharing options...
timfreo Posted August 1, 2018 Report Share Posted August 1, 2018 I opted out! Fuck that site Link to comment Share on other sites More sharing options...
Guest takingdeepanal Posted August 2, 2018 Report Share Posted August 2, 2018 I managed to opt out as well. I cited the pageup debacle - and that seemed to be a good enough reason. Link to comment Share on other sites More sharing options...
Leather69 Posted August 2, 2018 Report Share Posted August 2, 2018 I will be opting out.. I have 2 gp's (one specialises in hiv etc and I get my prep thru her), a kidney specialist+surgeon (following kidney cancer).. the fact that I am a gay man who is active fucking raw shouldn't be available to 3 of them.. they are keeping me alive in kidney follow up., otherwise it is clinically irrelevant. Link to comment Share on other sites More sharing options...
Guest Posted August 3, 2018 Report Share Posted August 3, 2018 Its quite scary going on line, even though its supposed to be confidential given a code, our testing dates are all visible online to anyone in the medical field and what the tests were for Link to comment Share on other sites More sharing options...
Guest Posted August 4, 2018 Report Share Posted August 4, 2018 I did opt out, like so many others did not already realize that i had a file. It listed agency like Era health whom did testing etc, basically everything that used your name or medicare card, so much for confidentiality or getting a code. Link to comment Share on other sites More sharing options...
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