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Discontinue Prep


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Posted

How many on this site have discontinued Prep not due to the desire to be poz but  because of issues with their kidneys? 

Posted

I've been on PrEP for two and a half years, with a three month break after just over a year because my eGFR dropped below the threshold 60.  It picked up once I stopped PrEP and I went back on.  I'm being closely monitored and estimated GFR is still hovering around 57-65.  Have just completed a measured GFR test to give a better indication of actual kidney function and will have a consultation with the specialists in a few weeks.  End result result may be that I go off PrEP or at least change from daily to on demand.  I have no desire to be poz but also no desire to wreck my kidneys.  And a strong desire for loads in my arse.  Hopefully there will be a more kidney-friendly, affordable alternative to Truvada approved before too long.

  • Upvote 1
Posted (edited)

I met a guy in a cruise bar in London a few months back who couldn't take PrEP because of kidney problems. He'd got so many bad side effects. Felt really bad for him, because he didn't really want to be poz, but seemed resigned to it happening eventually. I felt doubly bad because I was  starting to chase just then, and I get no side effects from PrEP at all, so I really felt like I would've swapped situations with him in a heartbeat if I could. Tried to console him that if he did get poz there were a lot more effective meds around than just Truvada, so hopefully at least one would be kinder to his kidneys than Truvada. His short- to mid-term solution was that he was only going to be top, as that reduced the risk, but like me he hated the idea of using condoms, and was hanging out for someone to breed him. Really felt for him.

Edited by barejackbro3
  • 2 months later...
Posted

I stopped PreP for other reasons than the kidneys. As far as the kidney function is concerned, I read that their capacity begins to diminish at age 40. 1% each year. I am 41 y. o. 

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