phillygwm Posted March 1 Report Posted March 1 22 hours ago, URS2USE said: I had heard about this procedure called IRE...the brand name is called "Nanoknife"... where they insert needles into the prostate and send electrical currents through the actual cancer cells destroying the membrane of the cancer cell itself. It is still in the trial stage with only 121 participants so far, so my Blue Cross Blue Shield will not cover the estimated $35,000 cost. Money not being a real obstacle for me, i actually spoke to one of only a handful of Doctors that perform IRE here in the United States...Dr. Brent Sharpe at Georgia Urology...and he was very frank about the procedure. It is only 25-85% effective at this time and may require a 2nd treatment. Even 85% is lower than radiation or surgical options, which (last I looked) were ~93%. When I was deciding, I wanted the best survival rate, first and foremost. I was willing to sacrifice 1-2% if it meant preserving function but if it had been a statistically significant difference, I would have gone with surgery. One of the things that surprised me for a number of years after my treatment was the "Sword of Damocles": Every check-up was stressful. I'm sure it's no different than any other life altering diagnosis including HIV (especially back in the day.) My radiation oncologist warned me that my PSA would bounce around for 2-3 years. Noted. Then my PSA spiked higher than it had ever been and I lost my sh*t anyway. Ultimately, it was nothing but every movement in your numbers induces stress or relief. 22 hours ago, URS2USE said: I love to sound, but sounding is NOT recommended after any of the three procedures, especially prostate removal. Funny you mention this. As I mentioned, I had urethral strictures, which is a risk with radiation. I woke up one day (several years after treatment) and couldn't piss. Wound up in the ER where they cath'd me. Forcing that in was the most intense pain ever. On a follow-up visit, the urologist attempted to cystoscope me. I couldn't tolerate it. They then tried narrower sounds to "widen the road", so to speak. Still no dice. They had to do it under anesthesia. Peripheral radiation damage is probably why recreational sounding isn't recommended. Of course, I suspect docs would try to discourage it, regardless of cancer status. 2 Quote
likaleather Posted March 7 Author Report Posted March 7 Well I had urology visit this week. Was told I had 6% chance of high grade prostate cancer, 25% of low grade cancer and 69% of no cancer. Odds are in my favor. The next step is going to be a prostate MRI with and with contrast. That is happening on April 25. Nothing moves fast it seems. Quote
phillygwm Posted March 8 Report Posted March 8 On 3/7/2026 at 4:09 PM, likaleather said: Well I had urology visit this week. Was told I had 6% chance of high grade prostate cancer, 25% of low grade cancer and 69% of no cancer. Odds are in my favor. The next step is going to be a prostate MRI with and with contrast. That is happening on April 25. Nothing moves fast it seems. No biopsy? Mind you, if MRI is as good a diagnostic as biopsy, go for it. That's going to be a lot easier. Quote
likaleather Posted 12 hours ago Author Report Posted 12 hours ago The MRI is supposed to show any lesions. Then the plan could be to use an ultrasound with MRI to take biopsy of lesions (fusion biopsy). Quote
Jimmi Posted 1 hour ago Report Posted 1 hour ago So , I had the radical prostatectomy. The good news? Anal sex still feels great even without a prostate. I still pre-cum a bit without the prostate. The difficult news? post biopsy they tell you there’ll be blood in your semen for six weeks or so. In reality, that never went away for me until I had my prostate removed, so my last normal cum was pre biopsy. Sometimes I wet myself when I’m getting fucked, which is very unsexy, unless your top is in to that. Most people lose an inch or two off their dick size post prostatectomy (the prostate being gone, your cock retreats back towards your bladder). Speaking of bladders, continence a real issue post surgery. Dry orgasms, in my opinion don’t feel as good as the pre-surgery versions. Erectile disfunction is a real danger post the operation. I still get erections but they’re not nearly as strong nor as enjoyable as they were. Different locations of the tumour, different Gleeson scores, different ages at diagnoses will affect whether radiation or surgery is a better option, so don’t take another patient’s experience as advice for your treatment options. Good luck with it all. 1 Quote
Jimmi Posted 1 hour ago Report Posted 1 hour ago On 3/8/2026 at 8:09 AM, likaleather said: Well I had urology visit this week. Was told I had 6% chance of high grade prostate cancer, 25% of low grade cancer and 69% of no cancer. Odds are in my favor. The next step is going to be a prostate MRI with and with contrast. That is happening on April 25. Nothing moves fast it seems. Don’t panic about nothing moving fast. Even if you have bad news, it’s usually a very slow growing cancer, so a delay is unlikely to affect outcomes or treatment options. For what it’s worth, in my case I has a biopsy after the MRI. But only because the MRI looked highly suspicious. Quote
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