Stoma issues

[Rawnorthwest]

Having recently recovered from cancer and now have a stoma fitted, just wondering if there others out there in a similar situation and how you get on with it and getting involved sexually?

[PozBearWI]

Excellent question.  I have a friend on FetLife who just had his closed up again after his recovery time.  I'll ask him, but I might not hear back for several days...

[Rawnorthwest]

Thank you @PozBearWI🙏 

[Erik62]

So sorry for you struggle. I had CA Rectum in 2022 & had clean recovery. Because of weight loss I had to have a PEG (feeding tiube) inserted. Not exactly the same but the stoma care is same. Look after YOU, everyone else takes a backseat. Cleanliness is vital. Having nursed "bowels" I found that mental health was HUGE. Fears of odour around others, leakage showing through clothing & worst of all bursting bags. Hygiene is easy but mentally decide that NO ONE will get you, no matter what. Develope a tough skin, people are remarkably sympathetic & most IMPORTANTLY. Make sure you keep your sense of humour, it does get very dark but, you will proudly become a member of the group that only people like: nurses, emergency services & the worst of them all - bitchy Gay men, are members of. 

  I got onto a crowded train, at peak hour, standing as usual. Then had a case of explosive diarrhoea. Best part was I travelled next 10 stations in an empty carriage & had the choice of any seat I wanted, LoL 😂 😂 . 

Hope this offers a small bit of comfort & the train story is just one of many, many other TRUE personal accidents. I could write a book. 

[Pozme1981]

I have a stoma and it’s turned some men on 

[DegenPrincess]

Had cancer as a teen and had a stoma for a bit. Just wanted to wish you the best 🙏

[Erik62]

On 11/4/2024 at 10:11 AM, Erik62 said:

So sorry for you struggle. I had CA Rectum in 2022 & had clean recovery. Because of weight loss I had to have a PEG (feeding tiube) inserted. Not exactly the same but the stoma care is same. Look after YOU, everyone else takes a backseat. Cleanliness is vital. Having nursed "bowels" I found that mental health was HUGE. Fears of odour around others, leakage showing through clothing & worst of all bursting bags. Hygiene is easy but mentally decide that NO ONE will get you, no matter what. Develope a tough skin, people are remarkably sympathetic & most IMPORTANTLY. Make sure you keep your sense of humour, it does get very dark but, you will proudly become a member of the group that only people like: nurses, emergency services & the worst of them all - bitchy Gay men, are members of. 

  I got onto a crowded train, at peak hour, standing as usual. Then had a case of explosive diarrhoea. Best part was I travelled next 10 stations in an empty carriage & had the choice of any seat I wanted, LoL 😂 😂 . 

Hope this offers a small bit of comfort & the train story is just one of many, many other TRUE personal accidents. I could write a book. 

NB: Sodi Bicarbonate mixed with, BOILED WATER (reduces risk of water born "bugs") is good for washing down site, after cleaning. This helps the stoma pad adhere to the skin more effectively. It is also a great relief from any itching that may occur particularly in warm weather. 

    I used it when I needed an access for nutritional feeds.

My thoughts are with you 😘😘😘.