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Posted

Very concerned about our records being available to multiple people. How do we opt out of this? Privacy is very important about testing and results etc

Posted
3 hours ago, rawindustrie said:

it'll take less than 5 minutes to go through the opt out process 

Unless you forgot that you opted-in to it a few years ago as part of a clinical trial. Learn from my mistakes. I can't actually opt-out now. It's a fucking nightmare.

Guest takingdeepanal
Posted

I managed to opt out as well. I cited the pageup debacle - and that seemed to be a good enough reason. 

Posted

I will be opting out.. I have 2 gp's (one specialises in hiv etc and I get my prep thru her), a kidney specialist+surgeon (following kidney cancer).. the fact that I am a gay man who is active fucking raw shouldn't be available to 3 of them.. they are keeping me alive in kidney follow up., otherwise it is clinically irrelevant.  

Posted

Its quite scary going on line, even though its supposed to be confidential given a code, our testing dates are all visible online to anyone in the medical field and what the tests were for

Posted

I did opt out, like so many others did not already realize that i had a file. It listed agency like Era health whom did testing etc, basically everything that used your name or medicare card, so much for confidentiality or getting a code.

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