I don't understand peoples fascination to be posed.
i understand the dirty excitement in fantasy around it. even i ( Being hiv+) find tehstories exciting). the realism isn't all that.
Yes, modern meds make it no big deal. i'd rather have his than type 2 diabetes.
I get tired very quickly. i have mild brains damage - 10 years undiagnosed.
i live with stigma etc.
its not exciting, i have to take a pill every day ( whoops woo you say). but it's easy to forget.
i live with the possibility of other illnesses creeping up on me.
the worry ( even though I'm UD) of passing it on.
If given the choice i wouldn't have this. it isn't a life ender but i wouldn't want to share it.
just my own humble opinion